Sunday, April 25, 2010

Great Recovery then Crash

I was wondering how I would cope going back to school but things were going really well. In fact, I started feeling really well. I actually ran a short distance. Each day was amazing. So what did I do? I over did it.

Coming into Easter I crashed. Really badly. I chart my energy levels each day. My usual is 3 out of 10. I was hitting 6-7 out of 10 and beginning to think of handing back my medical sticker for the car parking as I thought I was getting better. I am trying not to be bitter now. I wasted that beautiful recovery by working sooo hard. Now I am constantly exhausted. I am dreading going back to school. My energy level on a good day is back up to 3. On a bad day, of which I have had several in the last two weeks, it is about a 1. Lying on the lounge hurts too much and I have to go back to my bed where we have a latex topper which is so much more comfortable.

Lots of bad experiences lately. Have asked the doc for a brain SPECT exam. Don't know if he will say yes.

Have lots of work to do so had better get on with it. Am determined to post at least once a month. Maybe it will help me remember who I am and what I have and what I must do - I must live a disciplined life.

Oh, found a couple of good blogs at http://livingwithchronicfatiguesyndrome.wordpress.com/
and
http://livewithcfs.blogspot.com/